The Spina Bifida Association of Central Florida:
The Spina Bifida Association of Central Florida (SBACFL) is comprised of group of families and individuals with Spina Bifida, professionals and community volunteers, working to provide resources, educate, network, advocate and to bring about public awareness of Spina Bifida and folic acid’s role in reducing the risk of having a baby with Spina Bifida.
Where does the money go?
Spina Bifida Association of Central Florida depends upon public donations to support its mission to promote awareness about Spina Bifida and to enhance the lives of those affected. With your help we will continue to change lives through advocacy, education and public awareness, taking action to enrich the present and inspire hope for the future.
How does this benefit Central Floridians?
- Spina Bifida is a neural tube defect that happens in the first month of pregnancy when the spinal column doesn’t close completely. It is the most common permanently disabling birth defect in the United States ; however, the effects of Spina Bifida are different for every person.
- An average of eight (8) babies are born with Spina Bifida or a similar birth defect of the brain and spine each day. With the right care, babies born with Spina Bifida will grow up to reach their full potential.
- There are 60 million women at risk of having a baby born with Spina Bifida.
- The odds of having a baby with spina bifida is approximately 1 in 1,500. Some say it’s like winning the lottery a family never wants to win.
- Each day in the U.S., an average of eight families welcome a child with spina bifida into the world.
- Spina bifida is more common than muscular dystrophy, multiple sclerosis, and cystic fibrosis combined.
- About 50 percent of babies with spina bifida are selectively aborted after being diagnosed with spina bifida.
- Doctors recommend that every woman of childbearing age consume 400 micrograms of folic acid daily to help prevent neural tube defects like spina bifida up to 70 percent of the time. In spite of this, there are currently an estimated 166,000 people in the U.S. living with spina bifida.
- About 90 percent of people with spina bifida are also born with hydrocephalus. Many need a shunt inserted near the brain to drain the excess cerebrospinal fluid – and many require multiple shunt replacements during their lives.
Click here to see upcoming events benefiting the Spina Bifida Association of Central Florida.